Friday, August 16, 2013

MRI.

my beautiful boy had another MRI done today.
i always get a little tense/anxious/nervous beforehand.
i try to keep myself busy so i don't have time to think about it all.

before we left for the hospital this morning, i remembered to grab my hope key necklace.
my friend kara sent this to me in the mail a while ago.
it's a "Giving Key".
it came with this message.
i love this necklace.
i haven't been able to think about parting with it yet, but hopefully will be able to when the time comes.
i have worn it to all of connor's surgeries and procedures since i got it.
i'm glad i remembered it today.



we dropped Sissy off at cousin Caleb's on the way to the hospital.
we got to the hospital with plenty of time to spare.



enough time to give my sweet boy plenty of good luck kisses.



he got a spaceship gown to wear this time.

 super handsome.


he does not like laying on the doctor tables.
that crinkly sound of the paper on the table---he hates that.
(also, he always ends up hitting his head on the wall)
:(


good thing mommy loves to hold him:)


i was holding my sweet boy, giving him a pep talk, when i looked up at the ceiling....


and saw this!
AWESOME.
had to be a good sign, right??



we waited for a while.
............

lots of time for me to give lots of kisses....





finally, it was time for us to go back to meet the anesthesiologist.

once you put the yellow socks on, there's no turning back.


today, i got to stay with my son as they put him to sleep.
i layed him on the table and stood next to him, holding his sweet hand while they put the mask on him and gave him the anesthesia.

i haven't seen this done very often, and it's almost better that way.
it's so strange to see my son go from being so jerky/active to being so incredibly still.
hauntingly still almost.
it was a little jarring to see.
but i'm glad i got to be with him as long as possible.
it's equally as hard sending him back without me, or walking away from his completely still body like i did today.


but i knew he was in good hands.
so then i waited.
the waiting is always hard, too much time to think.
luckily i had my Sudoku puzzle book to keep my mind occupied.

finally, after about an hour and a half they called me back to the recovery room to see my sweet boy.


he always takes a while to wake up and come out of the anesthesia.

he had a tube in his throat to keep his airway open until he fully woke up.
(it's not a binky)
he was a little loopy for a while, but i got him all suctioned and ready to go.
he yanked out his I.V. and we had a slight mess with the blood, but other than that it went fine.


and now we wait.
for the results.
i'm not sure how long it will take for the geneticist to get back to me.
the waiting for results part is always hard.
maybe the hardest part.

so i will try to keep myself as busy as possible, and just wait.
and try and remind myself that we still have hope.
we will always have hope.
<3

Thursday, August 15, 2013

thoughts..

today i have so many thoughts running around in my head i feel like i need to try and get some of them out.
they probably won't make a lot of sense.
but that's my head.

connor goes in for his MRI tomorrow.
i think this is his 6th one?
at least.


i always get a little anxious before these tests.
i so desperately want it to show something.
something.
but do i?
because if it shows something, what will it be?
it won't be something good.
but the unknown is so unbelievably frustrating.


so i don't know exactly what i want.
answers would be nice.
but i don't want horribly awful answers.
and that's what i fear they would be.
so i just don't know.


 
i just know that i love him.
and i would do anything, anything to be able to help him.
he's just so perfect.
he really is.







my heart is also extremely heavy with worry for one of my best friends.
her new little baby is having some trouble, undergoing test after test with no real answers yet.
my heart just breaks for her.
i know the feeling of the unknown, the frustration, the worry, the fear.
and i hate that she is having to feel all that!
i just hate it.
if i could take all that pain and worry and fear away from any other mother, i would.
i would keep it all for myself if no other mother had to feel those emotions like i've felt.
like i feel.

i love my friend so much, and know that she is strong enough to handle whatever may come her way.
but i don't want her to have to.
i don't want her to have to deal with any of it.
 

i just feel so much today.
so many things.
so many thoughts and emotions.
all running crazy in my head.

and then i look at this sweet boy...
and for a minute i can breathe again.
 <3
 


Tuesday, August 13, 2013

a good deal.

last week i found a great coupon deal online where i could make an 8x11 hardcover photo book for only $7 shipped.

it arrived on my doorstep today!
i am sharing it because it combines 2 of my very favorite things....
 saving money with coupons, and my beautiful boy!
<3


i tried to pick out some of my very favorite pictures of him.
(that was hard, narrowing it down)
here 'tis...
























love him.
always.
<3

Sunday, August 11, 2013

happy Sunday.
we put away our monkey masks from yesterday and got our fancy pants on.
i love the look on connor's face in the picture above.
he looks so peaceful.


 we love him.



my beautiful boy has been doing ok, hanging in there.
like always.
he has an MRI coming up this week, on Friday.
we're hopeful something will come out of that.
something good, preferably.

 i love my sweet boy.

and my sweet girl.


i love spending my Sundays with my sweet babies.
happy Sunday.
<3