normal.

before we went to Illinois on vacation, connor had his blood drawn for a more sensitive micro-array DNA test.

i finally got a hold of his geneticist this week.

and the results were....

fine.

normal.

not abnormal.

sigh.

am i surprised?

no.

frustrated?

yes.

ready to give up?

um, no.

not ever.

it's just another test, another normal result.

with no sense of direction for us to be pointed in.

so i've scheduled another MRI, in 2 weeks.

this will hopefully at least give some clarity as to what is going on in regards to his brain atrophy.

is it still atrophying?

has it stabilized?

are certain areas shrinking more than others?

has something significant changed?

can it point us in some sort of direction?

anything?

these are questions i hope will be answered after the MRI.

these are questions that run through my brain and heart every single second of every single day.

along with a million others.

i just want to be able to do something for my beautiful boy.

i try not to think about the frustration of it all.

i would go completely mad.

i love my sweet boy.

he's so perfect.

<3