echo

we were up at Primary Children's again today, my beautiful boy had appointment with cardiology.

he had an echo done to check and see if all these suffocating episodes have had any effect on his heart.

good news:  his heart is fine.

yay for good news!

not such great news: there hasn't been any noticeable changes in his movements since starting his new med.

but it's probably still too early to tell.

so we'll continue to wait. and watch. 

and wait.....

today is day 5 on the medication.

i have been taking video of him every day and posting it to my facebook page so i can have visual evidence of any change in movement as it comes.

if it comes.

i have discovered that it's harder for me to watch him on those videos than i thought it would be.

it's so hard to see him struggle, to be recording it and not stepping in and helping as quickly as i normally would.

it's hard to see him though the eyes of a camera lens, it's somehow different.

i just love him so much.

i hope he knows how much, i hope he can feel it even when he's struggling so hard to just be.

he's so perfect, and beautiful.

so beautiful. 

<3