Sunday thoughts.

happy Sunday....

from us.

it's been another long week...

a week of keeping close watch over my sweet boy and his breathing.

it hasn't been great.

he's had small 'suffocating episodes' pretty much every day.

but i have been able to stay on top of it and prevent any full blown 'turning blue episodes'.

you just never know.

 he's so perfect.

i love him.

so much.

tomorrow the new medication we are going to try is supposed to be flown in and arrive at my doorstep.

this will hopefully help control his constant movements, which in turn will hopefully (cross your fingers) help in some way with his breathing and all these scary episodes.

i don't know how.

i don't know if it will have any effect at all on my sweet boy. 

we've tried a 'miracle medication' before, that was supposed to calm his movements right away....

and it did not.

it didn't do anything.

i'm not getting my hopes up too high, but of course, i'll always have hope.

we'll just have to wait and see, it will take a while for medication to set in and get the dosage right.

so we'll just have to wait and have patience.

and hope his breathing can stay somewhat stable for the time being.

and just love him.

 that will be the easy part.

he's so lucky he has his sister in his corner, loving and supporting him all the way.

 she is his biggest fan, his constant cheerleader, his best friend.

i love her so much.

i'm so proud and impressed with the way she constantly handles everything like such a champ.

she is such a good girl.

i am so blessed to have her in my life, as my best friend:)

and my beautiful boy.

i'm amazed every single day at the amount of strength this sweet boy possesses.

he has to fight and struggle so hard just to breathe.

he's so brave.

and strong beyond measure.

i am so lucky i get to be their mommy.

there truly is nothing i'd rather be.

happy Sunday.

<3