a question i often get asked about connor (mostly by little children) is, "what's wrong with him??"  most of the time it's a purely innocent question, one of simple curiosity.  i love it when people ask me questions about my beautiful boy, and the blunt honesty of children is something i am totally comfortable with.  the difficult part is how do i answer the question?  

several things run through my head when i get asked 'what is wrong with him?'  the first thing that comes to mind is NOTHING!!  there's nothing wrong with him, he's absolutely perfect!

the second thing that i think is, well that's a great question!  none of his doctors can figure it out either....and then i explain that he is still undiagnosed. 

i explain that he has a degenerative brain disease, his disease is progressive, it won't get any better, and will only get worse. 

but i can't tell them why, or when, or how.  i can't tell them any of those things.

but i can tell them so many more things about my sweet boy.

 i can tell them that he can hear just like you and me.

 he breathes the same air as you and me, even though it may be harder for him some days, and may sound a lot louder.

i can tell them that he has the softest, smoothest, most delicately pale skin.  and that i love to kiss his sweet face. (probably more than he'd like me to)

he has the thickest, fastest growing hair of anyone i know.

his eyes really are a window to his soul.

he looks for the brightest light possible, and his eyes are drawn to it. 

i know he's drawn to the light because that's what he's familiar with. 

i know he is protected by angels.  i believe he sees them, it's my deepest hope that he does. 

i know that he can tell me more with one glance of his eyes than he ever could with a thousand words.

i know that if i'm still and quiet and hold him close, i can hear a lifetime of lessons that are meant just for me. 

i know that when his hand is in mine, everything feels like it's going to be okay.

i can tell people that he has a sister.  and that's she's special too.

and that she is also his best friend,

and protector.  and that i know they knew each other before this life.

so the next time i get asked that question, 'what's wrong with your son?'  i still don't know the right way to answer, but you can pull up a chair and i can start telling you everything that's right with him....